Privacy Policy

This Privacy Policy describes Our policies and procedures on the collection, use and disclosure of Your information when You use the Service and tells You about Your privacy rights.

We use Your Personal data to provide and improve the Service. By using the Service, You agree to the collection and use of information in accordance with this Privacy Policy.

ALK Positive Canada (“we,” “our,” or “us”) is committed to protecting the privacy and confidentiality of personal information collected through our website, newsletters, and programs. This Privacy Policy outlines how we collect, use, disclose, retain, and safeguard your information.

1. Interpretation and Definitions  

1. Interpretation
   ‍The words of which the initial letter is capitalized have meanings defined under the following conditions. The following definitions shall have the same meaning regardless of whether they appear in singular or in plural.
2. ‍Definitions
   ‍For the purposes of this Privacy Policy:
   
   • Corporation (referred to as either "the Corporation", "We", "Us" or "Our" in this Agreement) refers to ALK Positive Canada.
   • Cookies are small files that are placed on Your computer, mobile device or any other device by a website, containing the details of Your browsing history on that website among its many uses.
   • Device means any device that can access the Service such as a computer, a cellphone or a digital tablet.
   • Personal Data is any information that relates to an identified or identifiable individual.
   • Service refers to the Website.
   • Service Provider means any natural or legal person who processes the data on behalf of the Corporation. It refers to third-party companies or individuals employed by the Corporation to facilitate the Service, to provide the Service on behalf of the Corporation, to perform services related to the Service or to assist the Corporation in analyzing how the Service is used.
   • Usage Data refers to data collected automatically, either generated by the use of the Service or from the Service infrastructure itself (for example, the duration of a page visit).
   • Website refers to the website of ALK Positive Canada, accessible at alkpositivecanada.org‍
   • You and Your refer to the individual accessing or using the Service, or the Corporation, or other legal entity on behalf of which such individual is accessing or using the Service, as applicable.

By using our website or services, you consent to the practices described herein.

2. Information We Collect
‍We may collect the following information 

1. Personal Information
   ‍We collect personal information when you:
   
   • Subscribe to our newsletter (including your email, name, and whether you identify as a patient, caregiver, or other).
   • Submit inquiries via forms or email.
   • Participate in events, advocacy campaigns, or volunteer.
   • Browse our website, where technical data (e.g. IP address, browser, device, pages viewed) is collected via cookies and tracking tools. This is considered Usage Data. 

2. Health and Role Information
   ‍When subscribing to our newsletter, you may choose to indicate whether you are a patient, caregiver, or supporter. While brief, this qualifies as sensitive personal information in the context of health-related communication. We collect this data:
   
   • With your explicit consent
   • To tailor communications, support, and content
   • To help us better understand and serve our community

3. Usage Data 
   ‍Usage Data is collected automatically when using the Service.
   
   Usage Data may include information such as Your Device's Internet Protocol address (e.g. IP address), browser type, browser version, the pages of our Service that You visit, the time and date of Your visit, the time spent on those pages, unique device identifiers and other diagnostic data.
   
   When You access the Service by or through a mobile device, We may collect certain information automatically, including, but not limited to, the type of mobile device You use, Your mobile device unique ID, the IP address of Your mobile device, Your mobile operating system, the type of mobile Internet browser You use, unique device identifiers and other diagnostic data.
   
   We may also collect information that Your browser sends whenever You visit our Service or when You access the Service by or through a mobile device.
   
   We limit collection to what is necessary to fulfil the purposes described below.

3. Cookies, Tracking, and Analytics

Our website is built on Webflow and uses cookies and analytics tools, including but not limited to Webflow’s native analytics and Google Analytics, to understand visitor behavior and improve functionality. We collect non-identifiable data to understand pageviews, device type and more.

Cookies enhance user experience and do not reveal personal identities unless information is voluntarily provided. You may disable cookies via your browser settings, though some site functionality may be affected.

Cookies and Tracking Technologies 

We use Cookies and similar tracking technologies to track the activity on Our Service and store certain information. Tracking technologies used are beacons, tags, and scripts to collect and track information and to improve and analyze Our Service. The technologies We use may include:

• Cookies or Browser Cookies. A cookie is a small file placed on Your Device. You can instruct Your browser to refuse all Cookies or to indicate when a Cookie is being sent. However, if You do not accept Cookies, You may not be able to use some parts of our Service. Unless you have adjusted Your browser setting so that it will refuse Cookies, our Service may use Cookies.

• Web Beacons. Certain sections of our Service and our emails may contain small electronic files known as web beacons (also referred to as clear gifs, pixel tags, and single-pixel gifs) that permit the Corporation, for example, to count users who have visited those pages or opened an email and for other related website statistics (for example, recording the popularity of a certain section and verifying system and server integrity).

Cookies can be "Persistent" or "Session" Cookies. Persistent Cookies remain on Your personal computer or mobile device when You go offline, while Session Cookies are deleted as soon as You close Your web browser. We use these Cookies for the purposes set out below:

1. Necessary / Essential Cookies
   
   Type: Session Cookies
   
   Administered by: Us
   
   Purpose: These Cookies are essential to provide You with services available through the Website and to enable You to use some of its features. They help to authenticate users and prevent fraudulent use of user accounts. Without these Cookies, the services that You have asked for cannot be provided, and We only use these Cookies to provide You with those services.

2. Cookies Policy / Notice Acceptance Cookies
   
   Type: Persistent Cookies
   
   Administered by: Us
   
   Purpose: These Cookies identify if users have accepted the use of cookies on the Website.

3. Functionality Cookies
   
   Type: Persistent Cookies
   
   Administered by: Us
   
   Purpose: These Cookies allow us to remember choices You make when You use the Website, such as remembering your login details or language preference. The purpose of these Cookies is to provide You with a more personal experience and to avoid You having to re-enter your preferences every time You use the Website.

4. How We Use Your Information
‍We use your information for purposes including:

• Provide updates, newsletters, event details, and surveys
• Personalize support and communications based on your role (patient, caregiver, etc.)
• Understand website usage and improve our services and outreach

We will never sell, rent, or trade your personal or health-related data to third parties. You may unsubscribe or request removal of your information at any time.

1. Retention of Your Personal Data
   ‍The Corporation will retain Your Personal Data only for as long as is necessary for the purposes set out in this Privacy Policy. We will retain and use Your Personal Data to the extent necessary to comply with our legal obligations (for example, if we are required to retain your data to comply with applicable laws), resolve disputes, and enforce our legal agreements and policies.
   
   The Corporation will also retain Usage Data for internal analysis purposes. Usage Data is generally retained for a shorter period of time, except when this data is used to strengthen the security or to improve the functionality of Our Service, or We are legally obligated to retain this data for longer time periods.

2. Transfer of Your Personal Data
   ‍Your information, including Personal Data, is processed at the Corporation's operating offices and in any other places where the parties involved in the processing are located. It means that this information may be transferred to —and maintained on — computers located outside of Your state, province, country or other governmental jurisdiction where the data protection laws may differ than those from Your jurisdiction.
   
   Your consent to this Privacy Policy followed by Your submission of such information represents Your agreement to that transfer.
   
   The Corporation will take all steps reasonably necessary to ensure that Your data is treated securely and in accordance with this Privacy Policy and no transfer of Your Personal Data will take place to an organization or a country unless there are adequate controls in place including the security of Your data and other personal information.

3. Delete Your Personal Data
   ‍You have the right to delete or request that We assist in deleting the Personal Data that We have collected about You.
   
   Our Service may give You the ability to delete certain information about You from within the Service.
   
   You may update, amend, or delete Your information at any time by contacting Us to request access to, correct, or delete any personal information that You have provided to Us.
   
   Please note, however, that We may need to retain certain information when we have a legal obligation or lawful basis to do so.

5. Consent and Withdrawal

By voluntarily providing personal information—including health-related— and opting in via our website or communications, you consent to our collecting, using, and disclosing your information for the purposes described above.

You may withdraw consent at any time by contacting us at info@alkpositivecanada.org. Withdrawal may affect your participation in certain communications or services. 

‍6. Data Retention and Accuracy

We retain personal information only as long as necessary to fulfill the purposes for which it was collected or to comply with legal and regulatory requirements. We follow reasonable steps to ensure data accuracy and completeness and encourage you to notify us of any changes.

7. Children's Privacy  

Our Service does not address anyone under the age of 13. We do not knowingly collect personally identifiable information from anyone under the age of 13. If You are a parent or guardian and You are aware that Your child has provided Us with Personal Data, please contact Us. If We become aware that We have collected Personal Data from anyone under the age of 13 without verification of parental consent, We take steps to remove that information from Our servers.

If We need to rely on consent as a legal basis for processing Your information and Your country requires consent from a parent, We may require Your parent's consent before We collect and use that information.

8. Disclosure of Your Personal Data  

1. Law enforcement
   ‍Under certain circumstances, the Corporation may be required to disclose Your Personal Data if required to do so by law or in response to valid requests by public authorities (e.g. a court or a government agency).

2. Other legal requirements
   ‍The Corporation may disclose Your Personal Data in the good faith belief that such action is necessary to:
   
   • Comply with a legal obligation
   • Protect and defend the rights or property of the Corporation
   • Prevent or investigate possible wrongdoing in connection with the Service
   • Protect the personal safety of Users of the Service or the public
   • Protect against legal liability

9. Data Security  

We employ reasonable administrative, technical, and organizational measures—including restricted access, encryption, and secure storage—to protect personal data.

The security of Your Personal Data is important to Us, but remember that no method of transmission over the Internet, or method of electronic storage is 100% secure. While We strive to use commercially acceptable means to protect Your Personal Data, We cannot guarantee its absolute security.

10. Changes to this Policy

We reserve the right to amend this Privacy Policy. Updates will be posted with a revised Effective Date. Continued use of our services after updates implies acceptance.

You are advised to review this Privacy Policy periodically for any changes. Changes to this Privacy Policy are effective when they are posted on this page.

11. Contact Us

If you have questions, concerns, or requests related to this Privacy Policy, please contact:

ALK Positive Canada

info@alkpositivecanada.org